Hydrocephalus
When you
 
have no where
else to turn, there is always hope !
When you have no where else to turn, there is always Hope!
 
If you'd like to leave us a message,or your story, please do!  We'd love to hear from you! If you would like us to contact you back, please leave your e-mail address in your message so that we can. 
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Ruth said:   December 4, 2010 8:06 pm PST
Forgot to include my email address: spicychicken21@hotmail.com

RUTH said:   December 4, 2010 8:05 pm PST
Madison is truly a miracle and a blessing. I have a baby girl - Grace with hydrocephalus. She was not suppose to survive the pregnancy or the birth,or the first few hours after birth. But 10 months on, after 5 operations, her shunt is working and we are enjoying being in our own house. God, faith, hope and my family kept me going. Children like Madison and Grace are miracles, most of all a very special blessing from God. Would love to contact you. I live in London, UK. God bless you and your family. Ruthxx

Teri Towns said:   October 20, 2010 7:00 am PST
I just read Madison's story, It was AMAZING!!! My grandbaby was born with hydrocephalus on Monday morning. We found out when my daughter was 5months pregnant on the ultrasound. She was delivered at 36 weeks by c section. Shunt surgery was today. WE would love for you to contact us. Madison is precious.

Chandra Samuels, RN, CCRN said:   October 18, 2010 6:04 pm PST
Such A Beautiful Story:) Sorry for the type-o above...Computer Problems:)...First I would like to introduce myself. I am a Registed Nurse Certified in Critical Care and currently in school to become a Family Nurse Practioner....I have a 7 year old son and he was born with hydrocepalus....His CTs were normal but he had all the signs of Hydrocephaluls.....after me being persistence of asking them to tap the shunt (this tests to see if the shunt is working) because at this point my child is not waking up...it was discovered that he had to go to surgery to get a revision....after this experience...God laid it on my heart to start a support group and I found this site when trying to explain to my son's teacher exactly what he had....We should start a support group because sometimes all u need is a listening ear or jus someone to explain to you how the medical personell thinks(although sometimes it is still a mystery to me:)....If interested please email me at gatravnurse@yahoo.com....Thanks ....Chandra

Chqndra Samuels said:   October 18, 2010 5:48 pm PST
I am a Neuro nurse and I think we should start a support group...I have a 7 year old son

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