Greetings and blessings from Sweden Merja, Tims mum Tim born 1992 with congenital hyrdocephalus and oesophageal atresi www.hydrocefalus.com

we think u r just too cute! we think ur gonna be a great kid. keep pushing on baby girl!!!

Your Madison is a little cutie and an inspiration as well. You are lucky to have her. I had water on the brain when I was born and it was arrested. I was slow to talk and didn't walk until I was 2 years old. I also have epilepsy, deafness, and later the Hydrocephalus became a problem in 1999 and had to have my first shunt. It failed in 2007 and had a new shunt put in, but the shunt drained the brain fluid out of my brain and I shut down, and had to go by ambulance to North Florida Regional Hospital where they did emergency surgery to clamp it off. The next day they found a subdural hematoma in my brain and they had to do surgery again. Anyway am sorta back to normal now. The shunt is still clamped off though. I have NPH> Anyway wonder what will happen next. Have a Merry Christmas you your Madison is such a cutie. Lots of love, A Hydrocephalus friend, Barbara and Hack Combs

wow you are very lucky to have her what an inspiration may God be with you and your family during this holiday season

I'm a NICU nurse that happened upon your website. What an inspiration! and message as to what God can do. Bless your family.

Madison and family, I just want you to know that you are such a blessing. It is so good to see you improve and doing so well. I am from Utah and we also have a hydro son who just turned 1 year. Your story is almost identical to ours. Carter was born with hydro and doctors gave us little hope. Like you, he is doing great. This web page will give hope to many others who are left in the dark about this condition and maybe answer many questions. You are a beautiful little girl and our prayers are with you. Feel free to visit Carter at familyshields.blogspot.com

Madison, It has been a blessing to watch you grow and succeed. We love you!!

madison i love you dearly. you are my life and i dont know what i would do without you. thank you for always making me smile. i love you too mommy!

Hi Sweetheart! It is Terah! I miss you soo much! I hope you are doing well. We will plan a play date soon I promise. Love Always!

It has been wonderful getting to know you. Madison is special and she does ROCK!! God is good.

I loved reading your story, I'm in tears. My daughter was a full term baby who had a 3/4 bleed due to long labor. I was sooo angry. I cannot tell you all the things the doctors at the hospital told me she would not do. My daughter is a miracle child.. like you I never left her side! they had to kick me out. And that is why babies do so well... they know their mommies love them. She is sooo smart. She knows about 90 words! That blows my mind. I wish I lived close to you, madison and reese could be friends! She is beautiful.. I know you are very proud! Thanks for your story, makes me feel like we're not alone!

Wow.. your lil one has been through so much and she is really a blessing and miracle from God! Thank you so much for sharing your amazing journey story! It really helps a lot of others out there going through scary times. Our daughter was born at 23w4d. on July 7th, 2008. She had level 3/4 IVH resulting from birth which has now developed into hydro. She goes in this Friday for a shunt. We are also from IN (about 45 min north of Riley Hospital). Her blog is www.xanga.com/kayli_raeann. May God Continue to Bless your family!!

Thank you for building such a wonderufl site! It's is such a help to parents to hear it from other parents who have been in their shoes. Looks like tomorrow is Madisons one year post-op for the cranio, congratulations!

i have emailed you earlier about my daughter but i just thought id leave a message on here too. our special little girls really are a miracle. i have been always told by family that she was sent to me special because none of them could have handled this situation. my daughter came so close to having hydrocephalus, it was such a heart wrenching time for us. and i know that pain you've had to deal with from the surgery, to the tests, to the ignorant doctors that just dont seem to understand a mothers love and instinct. i loved reading about your little girl, and i wish you and her the best of luck in life and let no person tell her what she cant do....because she can do special things.

Dear Madison, I've got the Ladies Bible Study group at our church all praying for you! We want you to keep growing, keep healing from the latest surgeries, and keep glorifying God with all you CAN DO! You Rock Little Madison! Many hugs and kisses and prayers, Debi

My name is Evelyn Hartung & i'm from NJ i've been in California for 15 years now that i had a hydro removed in NJ in 1995 at Robertwood Johnson University in New Brunswick, NJ. It's a hospital & a school together. I also was in a coma for 1 week right after the car acciodent & that i died on the way to the hospital. But because i had my baby Elizabeth in the car w/me at the time of accident.

Hi Madison! I just wanted to tell you that you are such a strong girl and I'm rooting for you all the way! I am 22 and I was born with Hydro, diagnosed at a year. I've had problems with doctors who didn't know what they were doing. DON'T EVER BE AFRAID TO QUESTION THEM, YOU HEAR ME?! You have A RIGHT to know what's going on with you. You're a strong, special girl and you're going places--don't ever let anyone tell you differently! I'm thinking lots of positive thoughts for you. You have lots of people who love you. I'd love to hear back from you: alison-tunnicliff@augustana.edu. Peace and love, Ali :)

Hi Madison, I miss seeing you. I live in Muncie now and I am doing well. I am glad everything is going well with you. I loved your photo gallery. Shannon

Madison is absolutely adorable. Thanks for sharing your website on the POCWH board. I had some ignorant doctors during my pregnancy with my first daughter. They told me she wouldn't live. In fact, they suggested that I abort my baby. Thank God I didn't listen. When she was born, she was completely FINE with no medical problems at all. My second daughter has hydro, is doing great, and is also the love of my life. Anyway, wishing Madison a speedy recovery.

Hey, sweet angel baby. :) Mommy said you had another surgery, and I heard you're home now. I am so glad to hear you're getting better! I had a big interview for a job yesterday and wanted to let you know I was thinking of you. You are such a courageous little girl, and this old shunted lady looks up to you! Thank you for being so brave and for being an example to me on how to live my life. Big hugs and kisses! "Auntie" LIZARD :)

Just wanted to let you know that I am praying for Madison to have a quick recovery from her surgery. Are you all still doing Hydro conference in S. Carolina at the end of the month? Alida

Madison is adorable. My Grandson,Tristan is 9 yrs. old now. He was diagnosed when he was approx. 4 months old. They say that he has the rarest form. He has endured 8 surgeries. I never knew what Hydrocephlus was ,until he was diagnosed. How was he diagnosed? My Daughter noticed that his little head was just looking too big to her. SHE BROUGHT IT TO THE DOCTOR"S ATTENTION...He said.. that she was right after he measured Tristan's head. He was fitted with a Pediatric Shunt, which wasn't enough to do the job. At 6 month, he had a adult shunt. He produces 3 times the amount of fluid thn normal. He has been surgery free for about 6 yrs. now. Thank You for sharing Madison's story! GOD BLESS YOU ALL!

I was horrified to read about the insensitive and ignorant "so-called" doctors said to you. Praise God that He is in control and not some person with diplomas and lots of letters after his name. My "petite girl" (third grandbaby) was born three months early, weighing 1 lb, 15 oz. Aside from PDA, a whole in her heart and fluid in her lungs, she had a Stage IV brain bleed. The doctors have said that she will have moderate to severe brain damage, but I am thankful that God is in charge and not mere, ignorant men. Madison is quite an inspiration to us. I pray that the Lord will continue to bless you - and am so very glad you had the faith to believe in Madison. She certainly does rock! God bless, Nema - (Grandmother of three), aka Cathy from California

She's a beautiful little angel. A child of God. I don't know what your going through but you're a great mother to deal with the trails and struggles that come with a sick child.

I just sent you a message about the Hydro conference and then stopped here to visit your site.....now, I see you are in IN as well! I see Dr. Boaz's partner, Dr. Jodi Smith!!! I can't believe you are so close! I would love to meet little Madison! Our story is at www.crousehouse.net. I can't wait to hear from you! Amie Crouse Mommy to Sam and Molly Sam Dx: Severe Hydrocephalus