Hydrocephalus
When you
 
have no where
else to turn, there is always hope !
When you have no where else to turn, there is always Hope!
 
If you'd like to leave us a message,or your story, please do!  We'd love to hear from you! If you would like us to contact you back, please leave your e-mail address in your message so that we can. 
Showing: 76-100 of 135
Melissa Standifer said:   August 26, 2008 8:26 pm PST
Madison is such a beautiful little girl. She's gorgeous. And is she ever smart. When I heard her say my name, it made me tear up. She's a darling little girl and you all have done a wonderful job at raising her. She's such a strong little girl. And even though I hardly know her, I love her to death. I would love to just pick her up and hug her and kiss her. She's a wonderful kid and so happy. She makes me smile. God Bless you guys. All my love-Melissa XOXO

Kristen said:   August 26, 2008 7:16 pm PST
Madison is so beautiful!! I could look at her pictures all day. My little sister's name is Madison too. It's a beautiful name. I am 27 years old and I have a 5 1/2 month old daughter that was born with Hydrocephalus. It was diagnosed when I was 20 weeks pregnant. She was born at 37 1/2 weeks with a head circumference of 48 cm. She's had a total of 6 surgeries already. Most of which has been shunt revisions. Finally this current shunt is working great *knock on wood*. I keep a blog on my beautiful angel. That link is: caymancindy.blogspot.com Thanks so much for creating this website on your amazing Madison. I have enjoyed reading about her and seeing her pictures. It has brought me so much peace. It's so scary to have so many unknowns with Hydrocephalus. Take care and God bless you!!

Ashley Besaw said:   August 26, 2008 8:01 am PST
im sure i wrote on here be4, but everytime i see your pic and hear your story, it fills my heart with love and my eyes filled with tears of joy!!!! My son Zayvier turned one on July 11th.. and i was told he was going to die when i found out back when i was prego... with the all the help of specialest and people like you, who are willing to share your story and experiences, it makes things sooo much easier to accept.. thank you sooooo much!!! i wish i had time to make a website, i just dont have time!!! Madison you are sooo beautiful and i wish the best for you... and 2 Madison's mom.. you are one strong mom!!! you are one of the best moms out there and there she be an award for people like us!!!! thanks again!!!

Alexis Aguilar said:   August 25, 2008 5:08 pm PST
Madison you are a beautiful bright and strong little girl.Kelly,i have hydro and im 23 yrs old.I understand exactly everything you are going through with Madison.It reminds me of some of the stories my parents have shared with me and their journey through my trials.Having hydro isnt easy or fun but it has saved my life.Im blessed to know that i can share my story with others just like me wheather they are younger or older.Its great to know there are others out there like me who understand.I say to you hang in there and keep being strong for Maddie.

Tiffany Tilley said:   August 24, 2008 7:37 pm PST
I too have a VP shunt but only need it because of a brain injury caused by a car accident. I just want to thank you for putting this site up!!!

Madisons oldest sister said:   August 22, 2008 10:47 pm PST
MADISON OH MADISON... I JUST WANT YOU TO KNOW THAT I LOVE YOU MORE THAN YOU WILL EVER KNOW. YOU HAVE BEEN THROUGH AN OUTRAGEOUS AMOUNT OF THINGS AND CAME THROUGH EACH ONE WITH FLYING COLORS AND YOUR FAMILY IS PROUD OF YOU FOR BEING SUCH A STRONG BABY GIRL. WE COULD NOT IMAGINE LIFE WITHOUT YOU!!! MADISON I LOVE YOU!!

kelley howald(juju) said:   August 13, 2008 8:38 am PST
u rock madison i luv u with all my heart

mugu said:   August 5, 2008 12:03 pm PST
ok i agree

Misty Moore said:   July 30, 2008 9:48 am PST
wow! those eyes and to read and see what she has gone through! she is what life is all about! i cried when i read what really went on! and kelley you are an amazing mother! maddison is an amazing little girl!

Darcie;;does the robot (your awesome cousin x] ) said:   July 15, 2008 8:19 pm PST
Madison, You are my hero.

Sherri Lee said:   July 6, 2008 7:14 pm PST
Hi! I remember reading Madison's story when I was pregnant with my son Miles. It was such a scary time, and I was so encouraged by her little smile and the photo of her with Pablo and Uniqua :) (our 2 yr. old also loves Backyardigans) I'd love to talk more with you about what you have done with Madison. Our little Miles is 6 months old now. He's doing great, but still can not lift his head. If you want to hear more about our story- our blog is http://sherrilee.wordpress.com There is a hydrocephalus tag on the right hand side. Thanks for the encouragement and inspiration!

Michael Overby & Danielle Smith said:   June 15, 2008 12:21 pm PST
Our daughter, Astrid, ("Baby Tealeaf") was born on 8/5 of '06 at 11:29AM. an ultrasound done about 24 H. earlier showed 'Marked Hydrocephalus'. This ultrasound was the starting point of the most interesting & terrifying emotional roller-coaster ride of our lives. I wish to digress at this point because I can't get the message from Lourdes out of my mind. Lourdes, I recommend that your Bro. contact Dr. Michael S.B. Edwards in Steven Hune's Pedi. Neuro. group @ LPCH/Stanford. His number is (650) 497-8775. His involvement in Astrid's case is a direct result of our resistance to what we were being told at the local County Hospital. He is, in my considered opinion, to be trusted implicitly.

Stephanie Capps said:   June 14, 2008 7:25 pm PST
Your little girl is truly a blessing. I have a 4 month old daughter named Kendal Faith. She was born on Feb. 5, 2008 with hydrocephalus. We found out when I was 18 weeks pregnant. It is truly amazing what God can do. Kendal is a very sweet baby and is doing great. I thank God everyday for my little angel. I love your website. I read your story on fetal hydrocephalus.com. I would love to talk to you more about what you have been through with Madison. It helps so much to see her doing so well. Thanks for sharing your story. Steph from NC

kaylie harrington said:   June 11, 2008 4:04 pm PST
Madison, My brother Jack suffers from the same condition as you do, I call him my little miricle aswell, its jus wonderfull to see people pull through this. Words can't express how amazing the people who pull through this are. All my love kaylie xxx

Lourdes said:   June 9, 2008 5:42 pm PST
God Bless you Baby Madison and your family. My Brother and sister in law are experiencing now just about the same story . My nephew baby Jacob was born on April 20 th 2008 weighing 1 lb 9 oz. Jacob has experienced many medical issues, blood transfusions and the hardest for all the family to deal with is the conclusion from the Doctors here in California. According to them Jacob may not survived due to having basically no brain left due to all the fluid and say if he survives he will be a vegetable. I wish you could see him. He now weighs 2 lbs 3 oz and 14inches in length. Jacob has been giving us many signs, that he wants to live and according to Doctors if he is alive is due to all the meds. I have seen Jacob respond when we talk to him. Yesterday I held him for the first time and so did my mom who is Grandma. He is breathing now on his own and they were going to put him on the lttle mask instead of being intubated. Our family continues to pray and ask God to do his will and many signs or coincidence have happened. I received your webpage from Korrina a mother who went through something similiar with her beautiful twins and just like Madison they too are miracles. I would like to know where Dr. Boaz is located and a phone number to contact him and discuss Baby Jacob's medical condition and see if he can Talk to my brother and Sister in law. Hope, faith and a miracle is what will keep our little Jacob strong and well.. God bless you... I will continue to do my part and network fro my family while they live in the hospital by baby Jacob's incubator. Please e-mail me at the above e-mail address.

Mikey Man said:   June 8, 2008 7:37 pm PST
You know madison, us hydro babies were only given to our parents because GOD knew that they would take really good care of us! And it looks as though your mommy has done an amazing job with you! You become more beautiful every day... Words cant even describe it! I hope one day, we can talk and become good friends. Of course, we will have to wait till i start to talk!!! LOL!!!! Always, Mikey Man I just wanted to let you know, that i have looked up to you and everything you do for madison! I remember all the advice and help you gave me when i was in the hospital with mikey, and really truley appreciate everything you did for me! And I know with this site, other mommys just like me, will get the help they are looking for! Thanks so much!!! You are absolutely amazing and a god send!!! Becca (mikey mans mommy)

Deborah Katy said:   June 6, 2008 10:44 pm PST
Hi, I found your miracle baby on youtube :-). It´s amazing to read her history and I am really touched by it. I will put your website on my blog links so people can know more about hydrocephalus and also know they can have hope. Thank you for sharing your story with us. God bless you, your little girl and your family more and more everyday. Big kiss from Brazil!!! Katy.

Angela Watson said:   June 6, 2008 9:10 am PST
Thanks you for taking the time to set up this wonderful site. Info. like this has been so helpful to us. Jacob was just diagnosed this week and we got very little info from our doctor so support and info. from parents has really filled in the gaps and been a great support. Thank you for sharing your amazing story!

Juju9 said:   May 10, 2008 9:46 am PST
Dear Madison, I keep telling your Mommy I'm going to steal you from her in the middle of night, and she is never going to get you back from me EVER!Love you bunches Julia

Yanni Valadez said:   April 18, 2008 3:07 pm PST
My grandma read your story, and was touched by it, because my family is going through the same with me. My name is Yanni. I am 5 years old with hydrocephalus and my family was told I was going to die at birth, but I am still here, I can't walk, play, roll or see, but I am still here. With the love of God, my family and the best nurse ever that takes care of me every day and group of good doctors. Madison just hang in there you have the greatest love from your family like I do and everything is going to be OK. We will be preying for you, your family and your doctors to take care of you.

Zach Howald (Madison's Big Bro) said:   April 16, 2008 10:20 am PST
I love Madison sooooo much and I don't think I could live without her... When I get home I cant wait to hold her in my arms once again... She's my life, world, and everything to me. I LOVE YOU!!!

Olivia said:   April 3, 2008 2:14 pm PST
You are so cute i've seen a lot if pictures of you!!!!!

madison (justices friend) said:   April 3, 2008 11:31 am PST
madison is very cute and im glad ive got to meet her and hope you guys the best!!!shes a miracal!!

Amanda Ellis said:   March 29, 2008 8:02 am PST
Madison, you are a BEAUTIFUL little girl, and such a strong little woman. Continue to be strong and brave.

Jeff said:   March 25, 2008 8:08 pm PST
Your a cutie madison god bless you and family Jeff

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